Trust, Not Money, Drives Health Data Sharing, Study Finds
A new study of Austrian consumers reveals that offering financial incentives won't convince people to share personal health data. Instead, users prioritize transparency, security, and control over their information. The finding reshapes how health tech companies and policymakers should approach building digital health ecosystems that actually gain public participation.
Originaltitel: User Perspectives on Sharing Self-Generated Health Data
BACKGROUND: Self-generated health data can support digital prevention and research, but their use depends on public willingness to share such data. OBJECTIVES: This study examined attitudes towards data sharing in the Austrian PreNUDGE project. METHODS: Qualitative focus groups and individual interviews with four population groups were analysed using meaning condensation according to Kvale. RESULTS: Preliminary findings show that acceptance depends less on incentives than on trust-related conditions such as transparency, security, and user control; economic data use was viewed critically. CONCLUSION: Designing trustworthy and user-centred data-sharing infrastructures is essential for participation.